1. The concerns and needs of patients must always be front and center with everything we do.
2. Patients deserve the latest knowledge about their disease, treatment options and available support.
3. Doctors must be knowledgeable about the disease, the need to consider it as a diagnosis, the latest treatment options and the sources of support available to patients, their families and caregivers.
4. We have a responsibility to be transparent to our donors and the community at large.
5. We have a responsibility to remain independent of outside influences that may potentially be biased.
6. Working in collaboration with other nonprofits, businesses, government agencies, scientists and others enhances what we can do.
7. Supporting collaboration within the scientific community will help us achieve our mission and vision more quickly, thus saving lives.
8. Because research holds the key to disease management and the cure, funding is essential.
9. Capturing the imagination and commitment of young scientists early in their careers will result in more focused attention to this disease.
10. Awareness building and advocacy are critical to combating this disease.
11. We as a board must stay educated in order to be as effective as possible and provide valuable direction.